One More Family Christmas

Our stories about meaningful experiences are written as they unfold. Therefore, most stories are in the present tense. Some of the patients in these stories are no longer with us. They, and their families, gave us permission to share their experience with you. For those who have since passed, we share these in their memories with deep appreciation for what they have taught us about life and living.

Rob Riddell, a cancer survivor, had a good life: a job he loved, faith and optimism in spades, and a large, happy family.

In 2016, at the young age of 54, the cancer returned. Rob was undaunted. Despite a poor prognosis, he felt blessed to have lived six years past his last bout with cancer.

We cared for Rob at home. Then, in October, he was admitted to our Compassionate Care Center for symptom management. His large family was a constant presence.

As he thought about how important his family was to him, Rob made a special request: one more Christmas celebration with his wife, children, and grandchildren.

“I want them to have one more Christmas with all of us together,” he told us. “It’s my gift to these grandbabies.”

Our staff started to plan. But, just a few days later, Rob declined rapidly. We realized we had hours, not weeks, to make this happen.

We found donors and volunteers to help. We were able to source a Christmas tree with decorations and place it in his room. A staff member knew someone locally who plays Santa at events, and he agreed to help us. A local non-profit organization donated two toys for each grandchild, which we wrapped and placed under the tree. Rob told us what he hoped to give to each family member, and we found those gifts, too. Staff and volunteers donated decorations and food.

That evening, all 11 grandchildren gathered around Rob’s bed and sang carols with him. The tree cast a warm glow as gifts were exchanged and the family opened the presents Rob requested we find for them. Santa visited with every child and grandchild and treated some of the adult family members to a Christmas waltz. Christmas music played in the background as the family celebrated together.

For Rob’s wife Sandra, this special Christmas is a memory she treasures.

“It meant so much to us, knowing it meant so much to him,” she says. “We hadn’t even thought that far ahead. But, he had. He knew he wouldn’t be with us by late December, so he made sure he had one more Christmas with all of us. It was kind of a closure for him and it was so special for us.”

To watch Rob’s story, visit https://www.youtube.com/watch?v=J2QRm8YoUR8

How can you honor life during National Hospice & Palliative Care Month? Visit the #WeHonorLife campaign page to learn about all the ways you can help, from volunteering and shopping to helping us increase access to specialized care for the seriously ill and their families. Questions? Contact us at hospice@hospicecp.org or 859-986-1500 or visit our website.

A Special UK Wildcat Surprises Young Patient

Our stories about meaningful experiences are written as they unfold. Therefore, most stories are in the present tense. Some of the patients in these stories are no longer with us. They, and their families, gave us permission to share their experience with you. For those who have since passed, we share these in their memories with deep appreciation for what they have taught us about life and living.

We have the honor of caring for Hunter. He’s 19, lives in Madison County, and has spent most of his life loving UK Men’s Basketball.

K Fund gift basket

When we learned what a Wildcat fan he is, we wanted to do something special for him. A staff member reached out to The K Fund, the fundraising arm of UK Athletics, to ask about donating UK memorabilia. Another staff member found her way to Richmond’s own Wildcat, Dominique Hawkins, to ask if he might be willing to help us stage a surprise for Hunter.

Thankfully, both the K Fund and Dominique were ready to help.

Dominique with staff members Sarah Rollins and Nicki Stewart, who helped plan Hunter’s surprise.

Although we provide care for Hunter at his home, we worked with his family to tell Hunter we wanted to meet him at our Compassionate Care Center for a surprise.

When the family arrived, we took them into the large family room. Waiting for them was the gift basket donated by the K Fund. It included a piece of the last championship floor, signed by Coach Calipari.

Hunter was shy, but you could tell how pleased he was.

Then, we brought Dominique into the room. His mega-watt smile and genuine kindness lit up the entire facility. A very surprised Hunter was still a little shy, but clearly in awe.

Dominique spent time next to Hunter as the family talked with him about UK and basketball. Later, Dominique even spent time visiting with the staff working at the Compassionate Care Center.

Thank you to Dominique and to the K Fund for making Hunter’s day.

How can you honor life during National Hospice & Palliative Care Month? Visit the #WeHonorLife campaign page to learn about all the ways you can help, from volunteering and shopping to helping us increase access to specialized care for the seriously ill and their families. Questions? Contact us at hospice@hospicecp.org or 859-986-1500 or visit our website.

Anthony’s Christmas with Santa

Our stories about meaningful experiences are written as they unfold. Therefore, most stories are in the present tense. Some of the patients in these stories are no longer with us. They, and their families, gave us permission to share their experience with you. For those who have since passed, we share these in their memories with deep appreciation for what they have taught us about life and living.

Anthony is a young man under our care. His home-hospice team worked to manage pain and symptoms and to support him and his family. As they got to know him, they were reminded that, even in the midst of crisis, children want to feel “normal.”

All he wanted, he told his family, was a Super Mario game. It was October, and our team immediately set out to make sure he got the game he wanted. We asked the local Walmart to partner with us. They did, donating the game along with dozens of Mario-branded toys, clothes, and bedding.

With a cartload of wonderful gifts, we had an idea: would Anthony’s family be interested in making this an early Christmas? Yes, they told us. Anthony still believed wholeheartedly in Santa, and he loved Christmas.

A local Santa agreed to help. On Halloween day, he and Anthony’s Hospice Care Plus team drove to Anthony’s home in a car filled with Christmas gifts wrapped by our volunteers. One team member remembers that, when Anthony first spotted Santa, he could think of nothing to say about this unexpected, magical moment except, “Santa. I love you.” For the next hour or so, Anthony and his parents—we made sure they had gifts, too—shared a small family celebration of Christmas on Halloween afternoon.

Magical moments like these are possible because our community of donors, businesses, and volunteers understands that, in hospice and palliative care, every moment matters. We believe that making these moments possible is every bit as essential to quality of life as the medical management of pain and symptoms.

How can you honor life during National Hospice & Palliative Care Month? Visit the #WeHonorLife campaign page to learn about all the ways you can help, from volunteering and shopping to helping us increase access to specialized care for the seriously ill and their families. Questions? Contact us at hospice@hospicecp.org or 859-986-1500 or visit our website.

To Preserve & Share a Song

Our stories about meaningful experiences are written as they unfold. Therefore, most stories are in the present tense. Some of the patients in these stories are no longer with us. They, and their families, gave us permission to share their experience with you. For those who have since passed, we share these in their memories with deep appreciation for what they have taught us about life and living.

All her life, Lois Harrison used the gift of her voice to express and share her faith.  Singing was very important to her. But, now in the advanced stages of Parkinson’s disease, Lois could no longer speak. 

It is very important to our care teams that people know their lives have meaning even though they face new limitations.  Sally, a chaplain at our hospice, wanted Lois to know that her life and her work still had great meaning, even without her voice. 

Lois wasn’t just a singer, she was a songwriter too.  One song she had written, “Welcome Home,” had special meaning now.  She wanted to use her recorded voice to share that meaning and encourage others. 

Lois has been singing with Allen and the Arvin Sisters (she was one of the sisters) for long enough that the only recording of “Welcome Home” was on cassette tape. 

She, Sally, and Mr. Harrison came up with a plan to digitize the song so they could share it with faith communities, whom they’d ask to play it on a specific Sunday. She needed a digital version if she was going to share it with churches. 

We created a video for social media featuring the song and put out a public call for help with the digitizing project. 

Shaunna Patton, a social worker with Caretenders at the time, connected us with Pastor B.J. Strautman with Living Water Church.  He agreed to digitize the song for Lois so that she could share it with worship leaders to use.

Parkinson’s may have taken Lois Harrison’s voice, but never her ability to share her faith with others.

The following video was created to honor Lois’s wish to share her gift with others. We share it here with deep respect, in her memory.

                                                                                                           

How can you honor life during National Hospice & Palliative Care Month? Visit the #WeHonorLife campaign page to learn about all the ways you can help, from volunteering and shopping to helping us increase access to specialized care for the seriously ill and their families. Questions? Contact us at hospice@hospicecp.org or 859-986-1500 or visit our website.

To Have Mom at My Wedding

Our stories about meaningful experiences are written as they unfold. Therefore, most stories are in the present tense. Some of the patients in these stories are no longer with us. They, and their families, gave us permission to share their experience with you. For those who have since passed, we share these in their memories with deep appreciation for what they have taught us about life and living.

We met Nancy through her mother who was in our care at the Compassionate Care Center.

During a conversation with Nancy, one of our nurses, Teresa Dickson, learned that she felt sad that her mother wouldn’t be with her for her wedding in June. 

Teresa immediately spoke with Heather Randall, a social worker, about Nancy’s situation. Together, they offered Nancy the opportunity to have her wedding at the Center.

When Teresa and Heather discussed the wedding idea with Nancy, they helped her understand that her mother, Connie, was declining quickly and that the wedding should take place the next day.

The Hospice Care Plus staff, immediately began reaching out to friends and supporters to help pull the wedding together.

We worried we wouldn’t find a wedding dress that quickly. But, as luck would have it, a staff member checked Facebook and found that a Mt. Vernon woman had a dress for sale in Nancy’s size. We contacted the woman (Mrs. Renée Oliver), and she very generously offered to donate the dress to Nancy. Mrs. Oliver later shared that her grandfather had been a patient at our Compassionate Care Center 10 years ago. When we met to pick up the dress from her, she said, “today would have been my grandfather’s birthday. You all finding my dress was just meant to be.” Amazingly, it was a perfect fit for Nancy and looked lovely on her. Many thanks to Mrs. Oliver!

Kroger Marketplace in Richmond is always so helpful to us. We contacted them to ask if their floral department might help us with a bouquet, and they donated a beautiful one, which included daisies, Nancy’s favorite flower.

Every bride should feel special and beautiful, and we wanted that for Nancy and her mother, even if we had only 24 hours to plan. Thankfully, a few key people donated their time and services quickly. Charm Todd at Perfect Touch Beauty Salon in Richmond donated hair styling for Nancy. Kylie Randall, daughter of social worker Heather Randall, donated makeup application. And Roni April, a former nurse at our Compassionate Care Center, saw a staff member’s Facebook post about needing bobby pins and used her lunch break at work to buy them and bring them to us.

Since we had to pull the wedding together so quickly, the families really didn’t have time to worry about returning home for clothing or purchasing special items. Amy Lasher, owner of Kid to Kid, donated ties and suspenders for the groom and the children, and Russell and Cynthia Cole donated a shirt for the groom.

We also wondered how to get a wedding-worthy cake quickly. Thankfully, Leah Dean Lowe with Chaos Confections Bakery came to the rescue. She donated a beautiful cake, decked out with the bride’s favorite flower: daisies.

Photographer Kat Wagers, owner of Kat Wayers Studios, was alerted to our Facebook post, in which we asked for help finding a professional photographer who might donate services on short notice. She agreed and came through with flying colors, spending a great deal of time taking and processing hundreds of photographs. We’re so grateful that Nancy has these beautiful photos to treasure.

Kelly Price Taylor, one of our volunteers and well-known in Madison County for her beautiful voice, sang a processional song for the bride and groom.  Another Hospice Care Plus volunteer, Hee-Young Shin, sang the recessional in the same lovely voice she uses to sing to patients at the Center when she volunteers. Ruth Crutcher, who prepares meals for patients at the Center, also joined in.

Family members, guests, and Hospice Care Plus staff and volunteers watched as the bride and her father came through the doors of the Center’s family room to take their places in front of the mantle. With Denise Roberts McKinney, Hospice Care Plus chaplain, officiating and her mother in her bed next to them, the bride and groom were married.

Our chief medical director, Dr. Hanan Budeiri (known to all of us as Dr. B), donated refreshments for a reception.

Our thanks to the family for their willingness to share this moment with you. That willingness stems from their appreciation for your help, without which Nancy and her mother would not have been able to celebrate Nancy’s wedding together.

Nancy’s mother died peacefully the next morning, knowing her daughter treasured her enough to make sure she was present at such a key life milestone.

Hospice care is often like this: sadness at the loss or potential loss of a loved one, punctuated by moments of joy, affection, peace, compassion, and togetherness. Our thanks to everyone who helped make this possible.

How can you honor life during National Hospice & Palliative Care Month? Visit the #WeHonorLife campaign page to learn about all the ways you can help, from volunteering and shopping to helping us increase access to specialized care for the seriously ill and their families. Questions? Contact us at hospice@hospicecp.org or 859-986-1500 or visit our website.


To be Self-Reliant

Our hospice works with many senior patients, a population that is very interested in self-reliance. Our hospice also serves Appalachian counties in Kentucky, where self-reliance is prized and closely guarded.

And our hospice–Hospice Care Plus–is also very committed to honoring the values, wishes and needs of our patients & families. Yet, what are we to do when honoring a patient’s bucket-list wish for independence causes some safety concerns?

For women like Mrs. Brown, self-reliance is everything.

For women like Mrs. Brown, self-reliance is such a matter of pride that it qualifies as a bucket-list wish.

What if you were an 89 year-old woman who had lived on her family farm her entire life? You have no running water, so you haul it every day from the creek. You also lug coal in a bucket from the storage room to the stove, because a coal stove is your only heat source. You’ve raised a large family, who are all far away. Your husband has been gone for many years. You’ve grown and canned your own food all your life. You’re proud of being a strong, self-reliant, independent woman who has kept the family home and farm, even if it’s lacking in modern amenities and comforts.

This 89-year-old woman, Mrs. Brown (name changed), was a patient of ours, and our responsibility is to make quality of life as good as it can be—as defined by the patient and family. In this case, the patient defined quality as being self-reliant, independent, and never taking handouts from anyone. Her bucket-list wish, simply put, was to stay right where she was until her last breath.

We were challenged by her case. She was so admirable, yet the hospice team had concerns about her safety. The combination of her illness, age, and poor eyesight made it very hard to manage the coal stove. After the first couple of visits, the staff began to notice burns on her dressing gown. We were concerned that she would be seriously burned, or worse. The lack of running water also raised questions about how we could provide care in the home without risking infection.

Mrs. Brown was known and loved in her town, so there was no shortage of offers to have her move in with others. But it was out of the question. She insisted on paying her own way and living completely independently. Anything else was impossible in her mind. Anytime we broached the subject, she made it clear we weren’t to do so again.

Our care team had to be creative. We reached out, had conversations, made suggestions. After a few days, we had a deal we could offer Mrs. Brown—one that would allow her to remain independent, but give her the safe environment she needed in her last months. It would still be up to her, of course, and we were more than a little nervous about introducing the idea.

We told her about a local gentleman who had a property that he only occasionally used. It was fully furnished, but sitting empty. He worked with the team to offer Mrs. Brown a job: if she would temporarily move to his house and work as the caretaker of the home, he would pay her in room and board. She would not have to give up her farm and home—just leave it for a while to do a job that a friend needed.

To our great relief, Mrs. Brown agreed. In fact, she was thrilled. She was actually honored to be offered a job (“at my age!,” she said to us). She felt she was still paying her own way in life, which was so essential to her. She also confessed that it was “heaven” to have gas heat and running water.

Now, we have to be honest. The local gentleman—our partner in this deal—did not need a caretaker. He was just another community member who was worried about Mrs. Brown, but who knew what her independence meant to her. He fabricated the need for a caretaker so she could live out her days according to her one bucket-list wish: to live completely independently until her last moment.

Thanks to a creative staff and the wonderful communities in which we live and work, we were able to honor a patient’s bucket-list wish for self-reliance without compromising safety or the quality of care. Mrs. Brown wouldn’t have it any other way. And neither would we.

Wishes like these are made possible exclusively through donations from people like you.

Help us celebrate National Hospice and Palliative Care Day by donating or volunteering with Hospice Care Plus at #WeHonorLife.

To See My Granddaughter Again

a patient with his granddaughter

Mr. Beagle with his beautiful granddaughter. He reunited with her after telling his hospice chaplain that seeing her again was the most important thing to him.

We see it again and again, without fail. Often, bucket-list wishes are about people and relationships. We saw it again recently when a grandfather in our care expressed his deepest desire.

Sally, Mr. Beagle’s Hospice Care Plus chaplain, asked him what was most important to him during one of her visits. (We ask this of all our patients, regularly).  He said breathing was most important, because difficulty breathing is his biggest challenge. But his wife urged him to think more carefully about his answer.

“Now, now,” she said. “There’s something much more important to you than that.”

granddaughter and pt 3

She clearly thinks the world of him, too.

He paused for a few seconds, until tears filled his eyes. Then, he told our chaplain that there is someone special he really needs to see.

His three-year-old granddaughter lives 4 hours away. He and his wife raised her until she was 14 months old. He hadn’t seen her since. He adores her and, in that moment that he told Sally about her, it was clear that being with her is definitely what’s most important to him right now.

Thankfully, his team–Sally, his nurse Paige, and his social worker, Jackie–are committed to honoring these bucket-list wishes for patients and families. They went to work–contacting family members, asking questions–and discovered that the granddaughter and her parents very much wanted to visit, but money was tight and they weren’t sure how to pay for the fuel to get there and back.

So, we dug into our special fund for bucket-list wishes and found enough to provide a $50 gift card to fund the trip.

It was worth every penny, and then some. Just look at these pictures. Not only is it clear that he is at peace now that he’s with her again, but also that this child adores her grandfather. What an incredible moment to have captured, so that, in the years to come, she will have something to remember the special trip she took to see the grandfather who couldnt’ rest until he saw her again.

Wishes like these are made possible exclusively through donations from people like you.

Help us celebrate National Hospice and Palliative Care Day by donating or volunteering with Hospice Care Plus at #WeHonorLife.