To Salute My Grandson & Be Baptized

When we shared the story of Mr. Ramirez’s very special wish on our Facebook page, it reached nearly 400,000 people. Later, we made this simple video to use as part of our 2016 Bucket-List Challenge. Special thanks to his family, and especially his granddaughter, Blue, for sharing their memories and photos with us, and with you.

To Find a Home for A Navy Veteran

One afternoon, our hospice, Hospice Care Plus, was called to see if we could help a young Navy veteran, Mr. Jones (name changed), who was essentially homeless.

He had been living in a home with some family members, but difficult family dynamics led to it being a very unsafe environment for him, especially since he was coping with an end-stage disease.

One of our nurses was sent to evaluate Mr. Jones, and found that he was appropriate for hospice care. The challenge, though, was where we would care for him. He had no home.

After making several calls, it was clear there was no way to find an immediate home situation for the veteran patient. The Hospice Care Plus team met and made a suggestion: what if we housed him at our Compassionate Care Center in Richmond, so at least he could live in peace and comfort while we continued trying to find a safe and welcome living situation for him.

It was a big decision. We are reimbursed about $600 per day for patients who need inpatient care at our Center, as determined by Medicare guidelines. Unfortunately, though, it looked as if Mr. Jones might not meet those Medicare guidelines for inpatient care—just for hospice home care. In order to let him stay at the Center, then, we’d have to be prepared to accept the home care reimbursement rate of $130 per day instead of the inpatient reimbursement of $600 per day. If he stayed two weeks, and if he never met those inpatient Medicare guidelines, we stood to lose about $6,580. If he stayed more than two weeks, it could add up to an enormous amount of lost funds.

But, we all felt there wasn’t a choice, really. We had a bed, and a dying veteran needed a home. How could we not invite him to stay? If anyone deserves compassion and dignity at the end of life, it’s our veterans.

He came to the Center and was given a room of his own. When he was well enough to eat, our dietary staff loved to cook for him and bring him meals. Our We Honor Veterans program presented him with a framed certificate, thanking him for his service.

He also got to enjoy some of the things that meant a lot to him throughout his life. An avid guitarist, Mr. Jones loved rock music. His favorite times in life were spent going to various music venues, watching bands he loved, and joining them on stage to jam along with them.

Since he couldn’t do that anymore, he did the next best thing—he brought his guitar with him to our Center.

“I think it helped him remember really happy times of playing with his favorite bands,” says Diana Bond, the social worker at the Compassionate Care Center. “You could always tell when he was feeling well, because that’s when he’d pick up the guitar and strum for a while.”

Diana worked to find Mr. Jones permanent placement at a VA facility in Kentucky, but he deteriorated so quickly that it wasn’t possible to transfer him anywhere else. So, the Center was his home until the end. He died peacefully a few weeks after coming to us for a safe, caring home.

Mr. Jones never said to us, “My bucket-list wish is to live out my last days in a safe place, under a roof, in a warm bed, with homemade food and loving people around me—not on the streets.” He didn’t have to. It was unexpressed but clear as a bell. Who doesn’t want that? It’s incredibly tragic that such a basic human need became a bucket-list wish for him. But, it did.

We’re not sure how we’ll recover the losses from that stay, but we still feel we did what we had to do. Twenty-five percent of dying Americans are veterans. They gave us their all. They deserve no less from us.

To be There for His 1st Day of School

One of our favorite bucket-list stories–or any kind of story!–is about a loving grandmother named Nancy. Nancy and her husband Skip had nearly 40 years of history together when she learned she had lung cancer in June 2009. By Christmas, she knew curative treatments were no longer helping. Her focus became quality of life, and we were honored to be asked to care for her at home.

Nancy and Skip were proud parents and grandparents. They loved living in Berea, Ky., and being close to their family, making memories and sharing milestones. And one of Nancy’s very favorite milestones came each fall; she loved watching her grandchildren get on the bus for the first day of school each year.

“She always enjoyed that,” says Skip. “Everyone has these memorable moments in their lives. It’s different for everybody. Seeing her grandchildren get on that bus was big for Nancy.”

In fact, it was big for her when her own children were young, too.

In that winter of 2009 as Nancy, a former nurse, coped with the knowledge that treatments weren’t helping, her thoughts turned to her youngest grandson, Deacon. She told a close friend, Carol, that her one big hope was to hang on long enough to see Deacon step on that school bus for the first day of school.

“I can’t begin to describe how important this was to her,” says Carol.

Nancy and her family made it through that winter, the spring, and into the next summer. But, around July, her condition deteriorated quickly. On July 29, 2010, she was admitted to the Hospice Care Plus Compassionate Care Center for end-of-life pain and symptom management. The nurses and the rest of the hospice team went to work to get her pain and symptoms under control so that Nancy would be comfortable. Then, the team talked with the family about Nancy’s prognosis, explaining that she was close to the end of life.

Hospice staff are very aware that comfort and peace are about more than just physical pain and symptoms. The entire team—nurses, aids, chaplains, social workers, and more—work together to get to know the patient and the family, to better understand what’s needed to bring the most peace to everyone.

This was certainly the case for Nancy. Nancy’s physical symptoms, including her pain, were under control. Still, she was agitated. She didn’t seem at peace.

Her beautiful family and her close friend Carol thought they knew why.

Carol, Skip, and Nancy’s Hospice Care Plus team took action. They contacted Skip Benton, director of transportation at the Madison County Board of Education. Explanations were given. Plans were made.

The next evening, July 30, just before 8 p.m., Nancy’s nurse wheeled her outside to the front of the Compassionate Care Center. Deacon was standing there, all dressed up for the first day of school. Seconds later, a big yellow school bus rounded the bend toward the Center.

Nancy couldn’t believe it.

The driver flashed the lights and extended the safety bar as the bus approached the Center, just as she would at any other bus stop. She pulled up to where Deacon waited, right next to his Nana’s wheelchair. When the driver opened the doors, Deacon hugged his Nana, told her goodbye, boarded the bus, and waved to her from the front seat as the Madison County school bus eased away from the curb.schoolbus

When the nursing staff got her back into bed, Nancy told Skip, “I am so happy I got to see that.” She drifted into a state of semi-consciousness immediately afterwards. Those were her last words.

Just after dawn the next morning, Skip knew Nancy was almost gone. “I went over, took her hand, and told her, ‘Nancy, it’s time for you to go home. You need to be with your mother, your dad, and aunts and uncles. I want to thank you for being my wife. We had a wonderful 40 years, beautiful children and grandchildren, but it’s time for you to go home.”

She passed peacefully moments later, less than 12 hours after watching her youngest grandson board the school bus for the first time.

All of us at Hospice Care Plus would like to thank Skip, Carol, Deacon, and Nancy’s entire family for allowing us to share their beautiful story. Special thanks also to the compassionate, wonderful people with Madison County Schools and its Board of Transportation for their willingness to partner with us in doing whatever it took to help one special Nana die in peace.