To Have Coffee with an Old Friend

Our stories about meaningful experiences are written as they unfold. Therefore, most stories are in the present tense. Some of the patients in these stories are no longer with us. They, and their families, gave us permission to share their experience with you. For those who have since passed, we share these in their memories with deep appreciation for what they have taught us about life and living.

When we ask our patients what’s most important to them or what’s on their minds, what we are trying to do is learn. We can’t meet a need that we haven’t learned about. Many needs are relatively obvious and easy to meet: a walker for support, a new medication to treat a new symptom, for instance. Other needs take time to reveal themselves, but they are no less important.

One of Fred’s needs was about home, routines, and the special companionship we often find in our four-legged friends.

Fred wanted to go home again and have a cup of coffee in his favorite spot on the couch with his dog, Sam.

We’ve cared for Fred at home for several months. Recently, though, his pain worsened and his symptoms changed. He chose to come to our Compassionate Care Center, where we’d work to get his symptoms under control.

He missed home, though. He missed his beloved dog, Sam. And he missed that comfortable spot on the couch where, every day, he would enjoy a cup of coffee.

So, as we have done many times, we partnered with the generous team at Madison County EMS. They worked with us to get Fred home safely. His Hospice Care Plus nurse, Jodi, arrived before Fred so she could make a pot of coffee. Madison County EMS stayed at home with Fred while he sat on his couch, had coffee, and reunited with Sam. They gave him all the space he needed to savor that time at home. Then, they took him back to the Center, where we continue to manage his pain and symptoms.

We’re so grateful to Fred for letting us do this with and for him and for reminding us that hospice care is about living each day to the fullest and making every moment matter.

Special thanks to Madison County EMS for being such good partners for those in our care, to Cheryl for facilitating Fred’s homecoming, to Jodi Neal for making a fantastic cup of coffee, and to all our staff in Berea and at our Center for pulling this together so quickly.

How can you honor life during National Hospice & Palliative Care Month? Visit the #WeHonorLife campaign page to learn about all the ways you can help, from volunteering and shopping to helping us increase access to specialized care for the seriously ill and their families.Questions? Contact us at hospice@hospicecp.org or 859-986-1500 or visit our website.

To Make a Meaningful Mark

Our stories about meaningful experiences are written as they unfold. Therefore, most stories are in the present tense. Some of the patients in these stories are no longer with us. They, and their families, gave us permission to share their experience with you. For those who have since passed, we share these in their memories with deep appreciation for what they have taught us about life and living.

We all have bucket-list wishes. Sometimes the thing you want to do seems simple, like getting a tattoo, but is really about much more–claiming and honoring someone you love, for instance.

As our Hospice Care Plus home care team worked with and cared for Deloris, it became clear that one of her daughters was on her mind. Deloris had tattoos representing each of her children. But this daughter was adopted later in life, so she wasn’t included in the tattoo. As our care team learned more about her, they could see that this was important and meaningful. They did what they always do – tried to find a way to make it happen.

Chasity Smallwood-Coleman, our director of development, heard about Deloris’s special wish on her day off work. She was familiar with a local tattoo business–Lucky Lady Tattoos in Richmond–and reached out to ask its artist, Will, for help. Will agreed to donate his services.

Then, as we often do, we turned to our heroes at Madison County EMS about safely transporting Deloris to Lucky Lady Tattoos. They also let her be tattooed on the stretcher, which was more comfortable for her.

By the end of the day, Deloris had what she needed: resolution, peace, and a mark that claimed and embraced all of her children.

How can you honor life during National Hospice & Palliative Care Month? Visit the #WeHonorLife campaign page to learn about all the ways you can help, from volunteering and shopping to helping us increase access to specialized care for the seriously ill and their families.Questions? Contact us at hospice@hospicecp.org or 859-986-1500 or visit our website.

To Make Sure Sue Keeps Dancing

Our stories about meaningful experiences are written as they unfold. Therefore, most stories are in the present tense. Some of the patients in these stories are no longer with us. They, and their families, gave us permission to share their experience with you. For those who have since passed, we share these in their memories with deep appreciation for what they have taught us about life and living.

Charlie Conner and his wife Sue spent the winter at their Florida home for 17 years.  He loved the warm weather, dancing with his love of 52 years, and listening to her sing.

But when Charlie was diagnosed with cancer, everything changed. Winters in Florida seemed impossible.  Instead, they stayed closer to home, where Sue took wonderful care of him.  She didn’t leave Charlie’s side for four years.

As his condition worsened, Charlie told Sue he wanted to spend one more winter in

Sue and Charlie Conner 5

Charlie with Sue, the love of his life.

Florida.  It wouldn’t be an easy trip, and it would take a lot of planning, but Charlie wanted to see Sue dance and sing in the Florida sun again, so they made the arrangements. In November, they returned to their Florida home and were able to stay until April.

Not long after returning to Kentucky, Charlie’s physician suggested they look into hospice care.  He was admitted to Hospice Care Plus and his hospice team began to care for him. They quickly learned that he had another wish. He and Sue had always attended both of their family reunions in the summers.  Charlie wanted to attend one more reunion.

As the July reunion drew near, Charlie’s condition worsened again.  Knowing how important it was to him to make it to the reunion, the hospice team worked diligently to bring pain and symptoms under control, making frequent visits, adjusting medications, and collaborating with his physicians. When the big day approached, Charlie felt well enough to go. He wasn’t able to stay the entire day, but he did get to make that last trip to see his family.

A month later, Charlie passed away.

That’s when Sue told us that he had one more wish, and this one only Sue could help him with.

Sue was the love of Charlie’s life.  Throughout his illness, he worked hard to prepare her for his leaving.  His final wish to Sue was that she go on living.

Sue and Charlie Conner 1

Sue and Charlie surrounded by all the littles ones they love.

“He told me, ‘you love to dance and you love to sing.  When I’m gone, you go on living. Find someone to dance with and keep on singing,’” remembers Sue.

Hospice’s bereavement program stayed in touch with Sue to offer support. They were delighted to learn that Sue would, in fact, honor Charlie’s last wish.

“It’s only been a few months since Charlie passed, but I went to Florida this winter, because that’s what he would have wanted.  I’m continuing to live, just like he asked me to do.”

How can you honor life during National Hospice & Palliative Care Month? Visit the #WeHonorLife campaign page to learn about all the ways you can help, from volunteering and shopping to helping us increase access to specialized care for the seriously ill and their families. Questions? Contact us at hospice@hospicecp.org or 859-986-1500 or visit our website.

To Learn to Drive

In this reflection from a current staff member and former volunteer at Hospice Care Plus,  we learn that sometimes, even family members of hospice patients have important bucket-list items.

Faced with life without her longtime husband, a grieving widow learns to drive, with the help of a special hospice friend.

Faced with life without her longtime husband, a grieving widow wants to learn to take the wheel, literally.

I became acquainted with hospice as a volunteer while in college. My first assignment was with an older couple I’ll call Mr. and Mrs. C. I was asked to visit them weekly to give Mr. C some company and Mrs. C a brief break.

On my first visit, Mrs. C asked me to sit with her husband while she went to do laundry. I sat there, full of the sense of immortality young people have, and realized how quickly it can all be taken away. Yet, there was something very hopeful in what I saw. I saw a man in his own living room, being cared for by his wife of 52 years. The wall next to his bed was filled with photographs from Mr. and Mrs. C’s life together. I saw him as a young man with his parents, as a brand new husband and then brand new father, as a smitten grandpa, and then as a comfortably older gentleman with his arms around his wife.

I saw a life and a person—not a patient.

When Mrs. C came back, she leaned over him, kissed him on the forehead, and said, “I’m back, Daddy.” He broke into a huge smile and held her to him for a bit. I sat a little uncomfortably, trying to pretend I wasn’t misty-eyed.

This, I thought—this is what it should be like in the last months of life.

Mr. C died peacefully, at home, about two months after that visit. I continued to see Mrs. C as part of hospice’s bereavement program, which offers grief support after a loss. We became fast friends, and I quickly learned that she was anxious about life now that she was alone.

Mr. C always paid the bills and balanced the checkbook. He was also their driver. So, with Mr. C gone and their children far away, Mrs. C felt lost and helpless. She couldn’t get a handle on the whole checkbook business, and she felt very limited by not being able to drive. We talked about these issues each visit, when I’d come to take her to the grocery store.

One week, after we shopped and returned to the car, I asked Mrs. C if she’d like to learn to drive. She was frightened by the prospect and insisted she didn’t want to risk harming my car. I assured her that I had faith it would be okay. She got behind the wheel of that car in the grocery store parking lot, and spent 10 minutes learning about the pedals and the next 10 minutes weaving in and out of parking lot lanes.

We continued this for weeks, until, one fall day, she went for her road test and passed. We celebrated by letting her drive me to the grocery store, where she insisted on buying me a box of cookies. We ate the whole thing on the way back to her house.

Over time, we also worked together to master the art of the checkbook. I stayed in touch with Mrs. C for more than 10 years. I called to tell her all about the boyfriend I was sure would become my husband (he did). When we had our first child, I paid her a visit. When I moved out of state, we wrote letters. When I learned she passed away peacefully at home one morning, I cried, got in my car, drove to Kroger’s for a box of cookies, and ate the whole box in her memory.

Mr. and Mrs. C’s experience convinced me that hospice care is essential to the best quality of life in the last months—so respectful of dignity, of relationships, of hopes and dreams. They also taught me that our dreams change when life hangs in the balance. For them and for her, the dream was to share a life together, at home, until the last moment, and then to learn how to go on—independently, behind your own wheel—when you suddenly find yourself all alone in the driver’s seat.

Wishes like these are made possible exclusively through donations from people like you.

Help us celebrate National Hospice and Palliative Care Day by donating or volunteering with Hospice Care Plus at #WeHonorLife.